With efforts underway to modify or repeal the Affordable Care Act (ACA), also known as Obamacare, many cancer patients have spoken out about how affordable health insurance kept them from financial ruin. Magnifying their voices are the surveys and studies that illustrate the devastating monetary toll a cancer diagnosis can bring. Researchers have attempted to capture this distress with the term “financial toxicity,” which places the effect of high treatment costs on quality of life on an equal footing with the toxicity of the treatments themselves.
I explore the ramifications of the costs of cancer treatment in the Winter 2017/2018 issue of Cancer Today.
Here’s an excerpt:
When Candace Henley was diagnosed with colorectal cancer in June 2003, her fear was tempered by the knowledge that she had good health insurance through her job as a bus driver with the Chicago Transit Authority (CTA).
At the time, Henley was 36 and raising five daughters, ages 4 to 15, alone. She had pulled off the American dream: a single-family home with a backyard. “We had a great life,” she recalls. “We had great health insurance. [Everything] was as perfect as it could be.” Her problems began when she didn’t have enough savings to stay afloat financially after her cancer treatments left her unable to work.
Every family that faces cancer experiences the shock of learning that the disease is now at their doorstep. But once the diagnosis is made, paths can quickly diverge. The first fork in the road: whether you have health insurance and what type you have. The second: whether you have savings to cover deductibles and other out-of-pocket expenses.